5.2% of the worldwide population bring hemoglobin problems, leading to 300,000 to 400,000 kids born with serious hemoglobinopathies yearly. Thalassemia, a genetic hemoglobinopathy, happens in 4.4 out of every 10,000 live births and prevails in Mediterranean seaside locations, Africa, the Middle East, Southeast Asia, and southern China.
To assist in a higher understanding of thalassemia, a genetic hemoglobinopathy, BGI Genomics today launched its State of Thalassemia Awareness Report. This report examines the level of understanding and mindsets connected to the associated health threats, thalassemia provider screening, and hereditary therapy for providers. 1,847 female participants from 6 nations with high thalassemia occurrence were surveyed: Azerbaijan, China, Indonesia, Kuwait, Saudi Arabia, and Thailand.
67.6% of ladies in Azerbaijan think about evaluating after learning more about associated thalassemia health threats and expenses which is lower than the international average of 84.5%. If both partners are thalassemia providers, 44.6% of females in Azerbaijan can convince their partners to look for hereditary therapy and think about preimplantation hereditary medical diagnosis (PGD) which is likewise lower than the international average of 50.9%.
Study findings highlighted the immediate requirement to enhance awareness, address barriers, and improve access to screening:
- A lot of do not understand much about thalassemia: 70.5% of females did not understand much about thalassemia signs and the associated health dangers, with another 14.4% suggesting they never ever became aware of thalassemia.
- Greater desire to go through thalassemia screening with more details: After discovering the health threats and high life time treatment expenses related to thalassemia, 84.5% of ladies are more ready